Priority 8: First Nations-, Inuit- and Métis-governed research and data systems

This priority and the associated Peoples-specific actions were identified by First Nations, Inuit and Métis. Efforts made in these areas will help drive needed changes in outcome and experience for all First Nations, Inuit and Métis.

Actions

  1. Collect First Nations-specific data and set First Nations-specific indicators and targets.
  2. Invest in First Nations research capacity.
  3. Implement First Nations governance of the collection and use of data and research.
  1. Collect and report on Inuit-specific data.
  2. Determine impact of environmental contamination on Inuit health, specifically cancer risk.
  1. Collect Métis-specific data and develop Métis-determined indicators and outcomes.
  2. Invest in Métis research capacity.

Indicator Concepts

What research and data are available on environmental contaminants for your community?
Will your Indigenous government be able to identify its citizens in provincial health and cancer databases?
Have you established or developed meaningful engagement and a collaborative process to investigate Indigenous community concerns regarding cancer incidence in communities?
What mechanisms exist for sharing research findings back with Indigenous Peoples? Were Indigenous Peoples consulted/part of the development process?
How many Indigenous-led cancer research opportunities are there?
How many relationships (measured by a data sharing agreement, memorandum of understanding or bi-lateral agreement) are established and what is their quality (colonial or do they truly enable the ability of Indigenous groups to assert data sovereignty)?
Does your Indigenous government have a research and data governance framework/policies/protocols?

Our Priorities

Priority 1
Decrease the risk of people getting cancer
Priority 2
Diagnose cancer faster, accurately and at an earlier stage
Priority 3
Deliver high-quality care in a sustainable, world-class system
Priority 4
Eliminate barriers to people getting the care they need
Priority 5
Deliver information and supports for people living with cancer, families and caregivers
Priority 6
Culturally appropriate care closer to home
Priority 7
Peoples-specific, self-determined care
Priority 8
First Nations-, Inuit- and Métis-governed research and data systems

Acknowledgements

View the national, provincial and territorial partners who collaborated to support the development of the tool

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