Cancer Strategy / Strategic priorities / Priorities and indicators

Priorities and indicators

A set of indicator concepts has been identified and will be further developed and then used to measure progress towards the Peoples-specific, self-determined priorities

Ways of measuring the indicators

We will be using several data sources for the indicators:

Community engagement sessions led by Indigenous organizations
Interviews with First Nations, Inuit and Métis adults who have lived experience of the cancer journey
Indigenous-led surveys that provide high quality, Indigenous-determined and Indigenous-owned data

Surveys with First Nations, Inuit and Métis identifiers where approval has been given by Indigenous organizations whose community members are represented in the data
Linkage between Indigenous registries and healthcare databases made possible through collaboration between Indigenous organizations and cancer agencies/programs

Data will be added as they become available, starting spring 2023.

View indicator development process

Indicator Concepts

Were you able to receive care close to home?

How far do you need to travel to access care?

Did you feel your care provider treated you with respect?

Did you feel your care provider treated you with respect?

Was the medical terminology communicated accessibly?

Was the medical terminology communicated accessibly?

Was there integration of traditional foods for those wishing to have it?

Was there integration of traditional foods for those wishing to have it?

Was there integration of traditional medicine for those wishing to have it?

Was there integration of traditional medicine for those wishing to have it?

What research and data are available on environmental contaminants for your community?

What research and data are available on environmental contaminants for your community?

Can First Nations, Inuit and Métis communities, organizations and governments identify citizens in federal, provincial and territorial health and cancer databases in order to measure what matters to them?

Will your Indigenous government be able to identify its citizens in provincial health and cancer databases?

Were you able to have family and community supports with you during your cancer journey?

Was your escort or Elder able to be in the room with you?

Were you able to access care and resources in your preferred language?

Were you able to get assistance in an Indigenous language if you needed it?

Did your loved one receive culturally appropriate palliative and end-of-life care?

Did you receive culturally appropriate education materials for home health aids, healthcare providers, and community service providers to support the transition to end-of-life care?

How are First Nations, Inuit and Métis communities’ research ethics respected and their voices included throughout the research process?

What mechanisms exist for sharing research findings back with Indigenous Peoples? Were Indigenous Peoples consulted/part of the development process?

What First Nations, Inuit and Métis-led cancer research opportunities are there?

How many Indigenous-led cancer research opportunities are there?

Are there meaningful engagement and collaboration processes according to First Nations, Inuit and Métis which advance their self-determined data and research initiatives to improve cancer care outcomes? What do those look like?

Have you established or developed meaningful engagement and a collaborative process to investigate Indigenous community concerns regarding cancer incidence in communities?

What mechanisms are in place to uphold data sovereignty for First Nations, Inuit and Métis Peoples? How are your First Nations, Inuit and Métis research and data governance frameworks, policies or protocols being implemented?

How many relationships (measured by a data sharing agreement, memorandum of understanding or bi-lateral agreement) are established and what is their quality (colonial or do they truly enable the ability of Indigenous groups to assert data sovereignty)?